Privacy

What we don't store

The information you enter to generate a booklet — your name, age, diagnosis, stage, treatment details, and any free-text notes — is never sent to or stored on our database. It lives only in your browser session and is cleared when you close or refresh the page.

The booklet itself is generated on demand and is not saved server-side. We cannot retrieve a past booklet for you. Download or print the PDF if you want to keep a copy.

What we do store

• Anonymous counters: a single site-wide tally of total visits and total booklets generated. No identifiers, no per-user records.
• Feedback you submit: only the fields you complete on the feedback form. Name, diagnosis, and contact details are optional. Leave them blank to remain anonymous.
• Cookies: a single local-storage flag confirming you accepted the disclaimer/cookies banner. No third-party tracking cookies.

Third parties

To generate booklet content we send your inputs to a large-language-model provider over an encrypted connection. The provider processes the request transiently and does not retain it for training.

Medical disclaimer

Understanding Sarcoma is an education tool. It is not a medical opinion, diagnosis, or treatment plan, and does not replace your sarcoma care team. See the full disclaimer.

Contact

Questions, deletion requests for feedback you've submitted, or accuracy reports: reach us through the feedback form.